Are you an Atlantic Canadian who has
Welcome to the online home of the Nova Scotia Waldenstrom’s Macroglobulinemia Support Group
If you are newly diagnosed, you are probably full of burning questions – How long will I live? Is there a cure? Can my kids get it?
Or you may be confused by the Big C diagnosis, don’t remember exactly what the doctor said, and are wondering what to do next.
The good news is that WM is indolent, or slow-growing, and treatable. WM is more likely to die with you than you dying from WM.
- Frightened by the median survival time you found on Google? Nevermind, those statistics are a decade old, and newer therapies have greatly increased survival.
- Recent advances may soon turn WM into a chronic rather than acute condition. We know Wallies who have lived for 25 years or more with the disease.
- WM is rare, so many oncologists or hematologists have never seen it, and aren’t sure what to do. Perhaps a Second Opinion from a WM expert doctor is in order.
- And WM is for the moment incurable, so it will eventually come back after therapy.
If you have been diagnosed with WM or care for someone who has, welcome to the NSWM family of WM patients, caregivers, friends and relatives. We are a community providing regular support group meetings, email and phone support from fellow Wallies, and information on WM.