You have just been diagnosed with Waldenstrom’s Macroglobulinemia (WM), a rare, incurable blood cancer.
WM is classified as an orphan disease – 5 people per million are annually diagnosed with it. That means there about 150 new Wallies in Canada this year. Most oncologists have never seen WM. Drug companies have no financial incentive to find a cure for WM.
The WMFC (Waldenstrom’s Macroglobulinemia Foundation of Canada) and the IWMF (International Waldenstrom’s Macroglobulinemia Foundation) were founded by WM patients and caregivers to provide information and support to the WM community, and to raise money for scientific research on WM.
A recommended first step on your WM journey is to download some of the IWMF publications, a treasure trove of information on WM.
While anyone may be part of the NSWM Support Group at no cost, joining the membership of the WMFC is vital to increasing the amount of research, support, education and lobbying that can be done on our behalf.
For that reason it is of paramount importance that we Wallies all stand up to be counted, with our voices and with our dollars. No one else will do it for us.
What happens next depends on you.