The International WM Foundation operates an email forum where some 2000 Wallies from around the world seek advice from fellow travellers and share their experiences. You can find information about IWMF Connect here
IWMF also administers a closed Facebook group for WM patients and caregivers. A closed group means your posts are kept within the group, rather than sent to all your Facebook Friends.
A WM Complementary and Alternative Medicine talklist can be found in Yahoo groups.
- go to the Yahoo WMCam site
- click on “join this group” at the right
- go through the indicated procedures of signing up for a Yahoo ID and then request to join the WMCam group